The face of Ehlers-Danlos Syndrome is also the brains behind the quest to find its cure At just 27-years-old, post-doctoral scholar Cortney Gensemer, Ph.D., has quickly made a name for herself in the genetic research world.

Tackling a connective tissue disorder using nerve stimulationInterdisciplinary MUSC team wins Blue Sky Award to study the impact of vagus nerve stimulation on hypermobile Ehlers-Danlos syndrome.

Patient-scientists use personal experiences to advance researchA new summer intern program empowers young researchers by getting them in the lab to actually help fight their own disease.

Patients with often misunderstood syndrome taking science, medicine into their own handsAn often misdiagnosed disease called Ehlers-Danlos syndrome is the focus of growing research and clinical expertise at Medical University of South Carolina. Some patients are taking the initiative to research

Millions have the same 'bendy body' disease as my daughter. Why isn't the medical profession paying more attention? | CNNHypermobile Ehlers-Danlos syndrome is a connective tissue disorder. When Sarah Lazarus’ daughter was diagnosed with it, she discovered that the majority of cases are going undiagnosed for decades.

3 Women with EDS who are shaping the future - Reader's DigestMeet the women living with Ehlers-Danlos syndrome (EDS) and helping to shape the future for others through movement, charity and science

Franklin’s Community Spotlight — Dr. Cortney GensemerWhen Dr. Cortney Gensemer, a then-college student, was diagnosed with Ehlers-Danlos Syndrome (EDS), she had only one thought in mind: “OMG…

Ph.D. student has rare disease. Her own research discovered a potential breakthrough.

EDS researchers, patients meet for thank-you gathering for donorsResearchers, doctors, patients and donors gathered to celebrate the progress in researching Ehlers-Danlos syndrome.

MUSC student and Charleston teen at forefront of rare disease breakthroughMUSC student Cortney Gensemer and Charleston teen Sydney Severance are two of the strongest forces in S.C. advocating for research and treatment options for people with Ehlers-Danlos syndrome, a rare